The Hark Blog

This is the place to find the latest stories, developments and information around the ALS community. Please check back often and join in the conversation!

My Family's Journey Through ALS - Facing Reality

My Family's Journey Through ALS - Facing Reality

The journey continues

Mountain Views: Josh's Journey Continues

Mountain Views: Josh's Journey Continues

At a recent event with HARK we shared the stage with a young nurse who had lost her mother to ALS. I listened as she spoke of her experience, both tragic and inspiring all at once, and was particularly shocked to learn that in her 4 years of nursing school, ALS was only mentioned in a single slide containing a few meager bullet points.

My surprise that ALS is relatively unknown despite…